ELEANA ENG

LEAGUE PROFILE WWW.ARTHRITIS.ORG.GR 51 Stadiou Ave. | 105 59 Athens | Greece Tel.: 0030 210 8237 302 e-mail: [email protected]

THE LEAGUE “ Together we can Hellenic League Against Rheumatism fight (ELEANA/HELAR) is a non-profit RMDs and organization recognized by the state. It MSCDs was founded in 1978 in Athens and has more than 7700 members and 11 Professors of Rheumatology, Clinical Pharmacology and Immunology followers, who are mainly people constitute our Scientific Committee suffering from Rheumatic Autoimmune Diseases, Rheumatologists and Represents exclusively in Greece EULAR , EULAR PARE , EULAR YOUTH and the Department doctors interested in rheumatic of Public Information of United Nations for Greece. diseases and people interested in It is member of • PAIN ALLIANCE EUROPE • AGORA PLATFORM (founding member) supporting those suffering from • EURORDIS • ORPHANET • SJOGREN EUROPE (founding member) • ASIF • WORLD rheumatic autoimmune diseases. All LUPUS FEDERATION • LUPUS EUROPE • VASCULITIS INTERNATIONAL • ACTIVE CITIZEN members work voluntarily.  NETWORK. It is included in the EU Transparency Register . It has branches in 9 main cities of BROCHURE TEMPLATE Greece and strategic cooperation with THALIA, the Dodecanesean Association of Arthritis related Autoimmune Disease Sufferers and IASIS, the Cycladic Association of Rheumatic Disease Sufferers &friends Members of the Scientific Committee of ELEANA/HELAR are professors of Rheumatology in almost all Universities of Greece as well as professors and doctors of other specialties related to rheumatism.  It has 9 branches in major cities of Greece while it has strategic cooperation with the associations IASIS & THALIA.  2

COLLABORATIONS AWARDS Participates in a number of projects in collaboration with universities in the country 1RST PRIZE FROM PAE such as the Aristotle University of Thessaloniki, University of West Attica, and for the creation the Stigmapp the Department of Public & Community Health of University of West Attica that in collaboration with the have to do with public health & mobile applications. From October 2020 with the Department of Public and Department of National Focal Point & Health & Safety Policies at Work of the Community Health, the School of European Agency for Safety and Health Public Health, the University of West Attica and the Cyprus Anti- Rheumatic Association, 2020 1RST PRIZE FROM EULAR PARE for the project \"The professional life and problems of people with rheumatic diseases”, 2018 1RST PRIZE FROM EULAR PARE for the project \"Sexual life of young people with rheumatic diseases», 2017 1 RST PRIZE FROM EULAR PARE for the project \"Rights of people with rheumatic diseases\", 2016 2 ND PRIZE FROM PRIX GALIEN GREECE for our project “Health School” 2019 BROCHURE TEMPLATE 3

OUR MISSION Living in a wolrd where patients with rheumatic Inform the Greek population on the extent and dimensions of diseases will be free from the catastrophic impact 1 rheumatic diseases. that rheumatic diseases have on their lives. The provision of appropriate support to patients to improve their 2 quality of life and reduce the negative effects of rheumatic in everyday life, at work and entertainment. Research the social impact of arthritis-rheumatism, in patients 3 with rheumatic diseases in Greece. Improve the medical care of the patients 4 Cooperate closely with leagues, scientific societies and 5 governmental authorities for awareness disease campaigns Awareness for self-assessment of inflammatory arthritis 6 symptoms and pain and when to see the rheumatologis 4 BROCHURE TEMPLATE

OUR SERVICES Duis aute irure dolor in reprehenderit in voluptate velit esse cillum dolore eu fugiat nulla pariatur. Excepteur sint occaecat cupidatat non proident, sunt in culpa qui officia deserunt mollit anim id est laborum. Sed ut perspiciatis unde omnis iste natus error sit voluptatem accusantium doloremque laudantium, totam rem aperiam, eaque ipsa quae ab illo inventore veritatis et quasi architecto beatae vitae dicta sunt explicabo. Help Line for Awareness events Disease psychological and congresses awareness support across Greece and campaigns virtually for HCPs, patients and wide public Translate, publish Self managements Cooperation and distribute the education program with students’ handbook meetings Authorities “Clinical assess- ment of the musculoskeletal system” The handbook is being given free of charge to university students & doctors BROCHURE TEMPLATE 5

THE PROJECTS During the course of the years, Hellenic League Against Rheumatism organised too many projects . Indicative ones during the last 5 years HEALTH SCHOOL LUPUS GR.2021 SEXUAL LIFE AND RMDS SELF MANAGEMENT 30 events in different Greek cities A special visual project for Research Meetings on health education with the Events Booklet collaboration of Laboratory of Clinical Lupus  aiming  to contribute to Social media campaign Social Media Campaign Pharmacology of AUTH Leaflets Publicity relieving the disease from the Publicity stigma it bears. 17 photos of  well  known artists and 2 videos. ​ Each photo also contains an important message about Lupus.​ 6 BROCHURE TEMPLATE

STIGMAPP App for chronic pain in collaboration with University of West Attica and Cyplar HELP LINE TOUS INCLUDE PATIENT PATIENTS RIGHTS Since 2008 PHARMACOVIGILANCE Research, infographic 10:00-20:00 App and awareness ADHERENCE Events, campaign for pain Social media campaign BROCHURE TEMPLATE management of App and awareness campaign Publicity Osteoarthritis in for pain management of Stakeholders relations collaboration with AUTH Osteoarthritis in collaboration and patients association in with AUTH and patients WORK AND RMDS Spain and Malta association in Spain and Research Malta Events Social Media Campaign Publicity Stakeholders relation 7

OUR TEAM ATHANASIA PAPPA KATERINA TSEKOURA NADIA MALLIOU President Vice President General Secretary 8 and Manager HELAR THESSALONIKI BROCHURE TEMPLATE

KATY ANTONOPOULOU KATERINA ROUSTA LINDA BROWN JOHN DOE Special Secretary EVANGELIA OIKONOMOULA MACHI SALAMALIKI Treasurer and External Communications Board Member and Board Member and Director Manager HELAR Manager HELAR THESSALY PATRAS BROCHURE TEMPLATE 9

TRoMgeDtshearnwd eMcSaCnDfsight PHONE +00 210 8237 302 WEB www.arthritis.org.gr EMAIL [email protected] ADDRESS 51 Stadiou Ave. | 105 59 Athens Greece