SECTION B The following statements describe feelings and perceptions about psychological stress among Mothers of Children with Cerebral Palsy. Think of each of the items in terms of your relationship with your child(ren) with Cerebral Palsy. Please indicate the degree to which you agree or disagree with the following items by marking the appropriate number. 6- Clicking the box means you strongly disagree. 7- Clicking the box means you disagree. 8- Clicking the box means you are undecided. 9- Clicking the box means you agree. 10- Clicking the box means you strongly agree. 1 23 45 Strongly disagree Statement Strongly agree Code Level Strongly Agree Agree undecided Disagree Strongly Disagree Section 1: The effectiveness of The Behavioral Cognitive Mentoring Program in reducing Cognitive and psychological problems of the child among Mothers CBTP1 I have to keep a continuous control and guidance to my child. 1 23 4 5 CBTP2 Is it easy to communicate with my child to correct his cognitive 1 23 4 5 and psychological problems? CBTP3 Is the child able to communicate with other children easily? 1 23 4 5 CBTP4 The child has a good self-confidence in the society. 1 23 4 5 CBTP 5 Is the child good in the perception of the cognitive issues? 1 23 4 5 CBTP 6 Taught me how to give care to my child. 1 23 4 5 CBTP 7 Helped me understand my child’s behaviour and reaction. 1 23 4 5 CBTP 8 Let me know I am doing a good job in helping my child. 1 23 4 5 CBTP 9 Included me in discussions when decisions were made about my 1 2 3 4 5 CBTP10 4 5 child’s care. Told me about improvements in my child’s conditions. 1 23 Section2: The relationship between The Behavioral Cognitive Mentoring Program in reducing the Feelings of despair and frustration among Mothers 284
CBTFD1 child's disease was the main reason for the family problems. 1 23 4 5 CBTFD2 We suffer from economic problems to afford the medical treatment to 1 2 3 4 5 CBTFD3 4 5 my child. I feel shy when someone starts talking about my child. 1 23 CBTFD4 I feel shy because of the behaviour of my child in the opened society. 1 2 3 4 5 CBTFD5 I feel shy about receiving any guest in my house. 1 23 4 5 CBTFD6 I feel shy of participating in society celebrations. 1 23 4 5 CBTFD7 I feel shy about practising my hobbies. 1 23 4 5 CBTFD8 Investing time and energy in my job. 1 23 4 5 CBTFD9 I suffer from anxiety. 1 23 4 5 CBTFD10 Engaging in relationships and friendship which help me to feel 1 2 3 4 5 important and appreciated. Section 3: The relationship between The Behavioral Cognitive Mentoring Program in reducing the Concern for the future of the child among Mothers. CBTCF1 The child's disease is a challenge that cannot be solved. 1 23 4 5 CBTCF2 Will the child not able to practice his physical activities in the future. 1 2 3 4 5 CBTCF3 There are no relations between my child and his peers. 1 23 4 5 CBTCF4 Is the child not able to understand the others and react positively? 1 23 4 5 CBTCF5 Is the child not accepted in the society. 1 23 4 5 CBTCF6 My child doesn’t seem to smile as much as most children. 1 23 4 5 CBTCF7 My child is not able to do as much as I expected. 1 23 4 5 CBTCF8 My child is not able to get used to new things. 1 23 4 5 CBTCF9 My child is moody and easily upset. 1 23 4 5 CBTCF10 My child is violent when something happens that my child doesn’t like. 1 23 4 5 Section 4: The significance of The Behavioral Cognitive Mentoring Program in reducing the problem of the child's independent performance among Mothers CBTIP1 Child's performance in understanding and perception does not develop. 1 2 3 4 5 CBTIP2 Can I let my child go to the street alone without control and escort? 1 23 4 5 CBTIP3 Is my child able to take care of his personal hygiene? 1 23 4 5 CBTIP4 My child expresses his needs, wishes, and feelings. 1 23 4 5 Section 5: The relationship between The Behavioral Cognitive Mentoring Program in reducing the Feelings of despair and frustration among Mothers of Children with Cerebral Palsy in post- evaluation through moderator (social support) CBTPS1 There are no family groups for the families which have Children with 1 2 3 4 5 CBTPS2 4 5 Cerebral Palsy. The family feels loneliness in the society. 1 23 CBTPS3 I do not know charities or entities that present any support or services 1 2 3 4 5 for my child. 285
CBTPS4 I feel the stress that cannot be avoided. 1 23 4 5 CBTPS5 There is no psychological support for the families which have Children 1 2 3 4 5 with Cerebral Palsy. Section 6: The effectiveness of The Behavioral Cognitive Mentoring Program in reducing Cognitive and psychological problems of the child among Mothers of Children with Cerebral Palsy in post-evaluation through moderator (social support) CBTFDS1 There are no books or publications that give information to the families 1 2 3 4 5 which have Children with Cerebral Palsy. CBTFDS2 There are no regular visits or committees to teach the families which 1 2 3 4 5 have Children with Cerebral Palsy how to develop the perception and behaviour of their children. CBTFDS3 There are no special schools for the Children with Cerebral Palsy. 1 23 4 5 CBTFDS4 There are no effective programs to take care of the Children with 1 2 3 4 5 CBTFDS5 Cerebral Palsy. 4 5 The society does not give any importance to the perceptive and 1 2 3 behavioural problems of the Children with Cerebral Palsy. Section 8: The significance of The Behavioral Cognitive Mentoring Program in reducing the problem of the child's independent performance among Mothers of Children with Cerebral Palsy in post-evaluation through moderator (social support) CBTIPS1 There are no serious programs to develop children's mental and 1 2 3 4 5 physical performance. CBTIPS2 No appliances are available to help the child walk. 1 23 4 5 CBTIPS3 There are no achievements that indicate an improvement in the child's 1 2 3 4 5 CBTIPS4 4 5 independent performance. I do not know the ways to care for the disabled child. 1 23 CBTIPS5 There are some emotions in the performance of the child do not know 1 2 3 4 5 CBTIPS6 the reasons. 4 5 CBTIPS7 The Behavioral Cognitive Mentoring Program added awareness in 1 2 3 4 5 CBTIPS8 helping the child's independent performance through the cooperation 4 5 CBTIPS9 with friends. 4 5 The Behavioral Cognitive Mentoring Program added awareness in 1 2 3 helping the child's independent performance through the cooperation with relatives. The Behavioral Cognitive Mentoring Program added awareness in 1 2 3 helping the child's independent performance through the rehabilitated program. The Behavioral Cognitive Mentoring Program added awareness in 1 2 3 helping the child's independent performance through association. 286
APPENDIX E: LETTERS 287
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LIST OF PUBLICATIONS Al-smadi, M. S., & Bakar, N. A. (2019). An Empirical Analysis of the Effectiveness of Behavioral Cognitive Mentoring: A Case Study of the Mothers of Children with Cerebral Palsy. International Journal of Academic Research in Progressive Education and Development, 8(3), 460–478. https://doi.org/10.6007/IJARPED/v8-i3/6370 Al-Smadi, M. S., & Bakar, N. A. (2020). Enhancing the affordability of cognitive behavioral therapy for children. International Journal of Psychosocial Rehabilitation, 24(6), 2218–2231. https://doi.org/10.37200/IJPR/V24I6/PR260212 Bakar, N. A., Al-Smadi, M. S., & Abu Hassan, M. S. N. (2020). The effectiveness of behavioral cognitive mentoring: A model in reducing psychological stress between mothers of kids with cerebral palsy. International Journal of Psychosocial Rehabilitation, 24(6), 2550–2559. https://doi.org/10.37200/IJPR/V24I6/PR260244 Bakar, N. A., Al-Smadi, M. S., & Mohd Pauzi, H. (2020). Stress and issues of mental health for parent with special needs children. International Journal of Advanced Science and Technology, 29(7 Special Issue), 471–478. 289
CANDIDATE BIODATA Mohammad Shaban AL-smadi was born on 24th October 1988 at Irbid city, Jordan. I did my Bachelor Degree at Mut’ah university where I graduated on 2006 -2009 in Sports science. I also did my Masters at Yarmouk university at Irbid Jordan on 2012- 2014 in counselling psychology. I started my Doctor of Philosophy at University Sultan Zainal Abidin Terengganu Malaysia in February 2017. Email:- [email protected] 290
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